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Health-related quality of life of parents of children with phenylketonuria in Tehran Province, Islamic Republic of Iran Qualité de vie liée à la santé des parents d�enfants atteints de phénylcétonurie dans la province de Téhéran (République islamique d�Iran)

Etemad, K. and Heidari, A. and Setoodeh, A. and Shayeganrad, A. and Akhlaghi, A. and Azizi, M. and Nejatbakhsh, R. and Beglar, M.B. and Lotfi, M. (2020) Health-related quality of life of parents of children with phenylketonuria in Tehran Province, Islamic Republic of Iran Qualité de vie liée à la santé des parents d�enfants atteints de phénylcétonurie dans la province de Téhéran (République islamique d�Iran). Eastern Mediterranean Health Journal, 26 (3). pp. 331-339.

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Abstract

Background: Parents of children with phenylketonuria are at risk of reduced quality of life. Aims: This study determined the quality of life of parents of children with phenylketonuria in Tehran Province. Methods: The study was conducted in 2015 and included parents of children with phenylketonuria referred to three government children�s hospitals in Tehran Province that provide phenylketonuria services. Data were collected using the Farsi version of the World Health Organization Quality of Life-Bref questionnaire. Analysis of variance, t-test, Pearson correlation coefficient and multiple linear regression were used to assess the relationship between quality of life domains and sociodemographic characteristics of the parent and child. Results: The study included 240 parents; 55 were mothers. Quality of life of parents in psychological, social relationships and environment domains was low. Significant relationships were found between: physical domain and age of child at phenylketonuria diagnosis (P = 0.044); psychological domain and parent�s age (P = 0.019), child�s age (P = 0.007) and parent�s education (P = 0.015); social relationships domain and parent�s age (P = 0.003), and education (P = 0.002), household income (P = 0.025) and child�s age (P = 0.004; and environmental domain and residence (P = 0.034), parent�s education (P = 0.007), household income (P = 0.002) and child�s age (P = 0.049). In the multivariable analysis, parent�s age and education, child�s age, and household income were significantly associated with parent�s quality of life. Conclusion: Given the low levels of quality of life in the parents, education and more financial support are recommended. Keywords: quality of life, parents, phenylketonuria, Iran © World Health Organization (WHO) 2020. Open Access. Some rights reserved. © 2020, World Health Organization. All rights reserved.

Item Type: Article
Additional Information: cited By 0
Uncontrolled Keywords: adolescent; adult; analysis of variance; Article; child parent relation; cross-sectional study; education; environmental factor; female; health status; household income; human; Iran; Likert scale; male; mother; phenylketonuria; psychological aspect; quality of life; questionnaire; reliability; risk factor; scoring system; social interaction; validity
Subjects: بیماریهای تغذیه ومتابولیکی WD
بیماریهای کودکانWS
QU بیوشیمی
آسیب شناسی QZ
مقالات نمایه شده محققین دانشگاه در سایت ,Web of Science ,Scopus
Divisions: معاونت تحقیقات و فناوری
Depositing User: GOUMS
Date Deposited: 19 May 2020 06:54
Last Modified: 19 May 2020 06:54
URI: http://eprints.goums.ac.ir/id/eprint/10650

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